Wednesday, May 14, 2008
Well, Hmm
Mike has been doing extremely well for over two weeks. But then last night he had an episode right after dinner where he was acting squirrelly again. Sigh. Perhaps this is the "detox" that comes from being on cod liver oil for a while. Right now he is doing fine. We'll see!!! I am SO hoping for a new kid! But I must say, others who know him from church are saying they see a big change in him, over the past year.
Thursday, May 8, 2008
Hair test results came
Mike's hair elements test results just arrived. They show no readable amount of mercury in his hair. The highest toxic element is aluminum at 6.5 micrograms per gram, under the reference range of 8.
But we can't rejoice just yet. It is quite possible for a person to have plenty of mercury stored away in tissues such as liver and brain, but not have it excreted at all in hair or blood.
Andy Cutler's protocol gives you another way to read the test. It looks for abnormal patterns of element transport in the system, which is an effect of mercury poisoning. So it is looking indirectly for the presence of mercury using statistical analysis. I went to the posting at http://home.earthlink.net/~moriam/HOW_TO_hair_test.html#get_hair_test and followed the steps there to see whether Mike may have abnormal element transport.
His test does not raise any of the statistical red flags. So I guess we can breathe a sigh of relief. Take a look yourself at http://www.phylliswheeler.com/CuringAutismBlog/elementshairtest0508.pdf
But we can't rejoice just yet. It is quite possible for a person to have plenty of mercury stored away in tissues such as liver and brain, but not have it excreted at all in hair or blood.
Andy Cutler's protocol gives you another way to read the test. It looks for abnormal patterns of element transport in the system, which is an effect of mercury poisoning. So it is looking indirectly for the presence of mercury using statistical analysis. I went to the posting at http://home.earthlink.net/~moriam/HOW_TO_hair_test.html#get_hair_test and followed the steps there to see whether Mike may have abnormal element transport.
His test does not raise any of the statistical red flags. So I guess we can breathe a sigh of relief. Take a look yourself at http://www.phylliswheeler.com/CuringAutismBlog/elementshairtest0508.pdf
What's Next?
My peer advisor on this is cautioning that Mike may be in for a period of detox, as his body adjusts to the cod liver oil and starts to get rid of toxins. It may start making too much ammonia, since he has the CBS mutation as determined by Yasko's test.
Last night he got angry and slammed open the fragile sliding door of our van. Now the door is busted. :(
Hope we aren't really in for it.
Here's what my pper advisor, who spends a lot of time researching this, is proposing for dealing with excess ammonia:
* lemonade made with filtered water - lemons - and xylitol (5 carbon sugar)
* carrots
* beets
*dandelion root and dandelion leaves/plant - dandelion tea
* ora-liv (dessicated liver)
* apples - apple sauce
* baking soda and baking soda baths
* carnitine - if one doesn't have trouble with methyl donors
* jerusalem artichokeo calcium d-glucarate
* magnesium (and zinc to enhance absorption)' upwards of 200 mg/dayaccording to studies: the enzyme that detoxifies ammonia requires magnesium.BTW, Tri-mag, 2 capsules, gives that much and it has AKA (see below) in it too
* molybdenumo bh4 in royal jelly - bio organ - bio thyro
* ammonia rna
* yucca
* curcumin if no trouble with methyl donors
* milk thistle - even though it has sulfur. The silymarin is the only thing I know that can regenerate liver cells. The more liver cells, the more power to process ammonia down the road
* cranberry - TACA now talks about it helping with phenols
* larch arabinosegalactan - ARA-6 aka arabinexo aspartate and glutamine (pears are a natural source of aspartates)
* butyrate (as in butter!)
* sodium benzoate
* ammonul (drug the doctors use in hyperammonemia)
* AKA - alpha-ketoglutarates.
Stay away from all things hard to digest by liver: phenols - dairy - protein- saturated fats - artificials - preservatives - drugs - caffeine. The diet called "Sara's Diet" is extremely helpful in giving the liver the break it needs for behaviours to stop quickly. Some people even report eye and hair colour changes in 3 weeks, vomiting and diarrhea stopping after 1 day, etc.
Last night he got angry and slammed open the fragile sliding door of our van. Now the door is busted. :(
Hope we aren't really in for it.
Here's what my pper advisor, who spends a lot of time researching this, is proposing for dealing with excess ammonia:
* lemonade made with filtered water - lemons - and xylitol (5 carbon sugar)
* carrots
* beets
*dandelion root and dandelion leaves/plant - dandelion tea
* ora-liv (dessicated liver)
* apples - apple sauce
* baking soda and baking soda baths
* carnitine - if one doesn't have trouble with methyl donors
* jerusalem artichokeo calcium d-glucarate
* magnesium (and zinc to enhance absorption)' upwards of 200 mg/dayaccording to studies: the enzyme that detoxifies ammonia requires magnesium.BTW, Tri-mag, 2 capsules, gives that much and it has AKA (see below) in it too
* molybdenumo bh4 in royal jelly - bio organ - bio thyro
* ammonia rna
* yucca
* curcumin if no trouble with methyl donors
* milk thistle - even though it has sulfur. The silymarin is the only thing I know that can regenerate liver cells. The more liver cells, the more power to process ammonia down the road
* cranberry - TACA now talks about it helping with phenols
* larch arabinosegalactan - ARA-6 aka arabinexo aspartate and glutamine (pears are a natural source of aspartates)
* butyrate (as in butter!)
* sodium benzoate
* ammonul (drug the doctors use in hyperammonemia)
* AKA - alpha-ketoglutarates.
Stay away from all things hard to digest by liver: phenols - dairy - protein- saturated fats - artificials - preservatives - drugs - caffeine. The diet called "Sara's Diet" is extremely helpful in giving the liver the break it needs for behaviours to stop quickly. Some people even report eye and hair colour changes in 3 weeks, vomiting and diarrhea stopping after 1 day, etc.
Wednesday, May 7, 2008
Mike Is Cooperative and Amiable
Well, folks, it's been about a week and a half now that Mike has been acting like a different guy--the cooperative, amiable son I always wished I had. After only 10 days I am hesitant to make a call. But I am hoping and praying for a permanent change! This change occurred when I started giving him cod liver oil, Carlson's capsules, three per day. I made no other changes. So I am thinking there is cause and effect here.
It was last June 1 that we embarked on this adventure, searching for nutritional supplements that would make a difference for Mike. So it's been just about a year.
I also have sent his hair in for mercury analysis. We'll see what that says soon I hope!
It was last June 1 that we embarked on this adventure, searching for nutritional supplements that would make a difference for Mike. So it's been just about a year.
I also have sent his hair in for mercury analysis. We'll see what that says soon I hope!
Monday, May 5, 2008
Cod liver oil is helping!
Mike is sleeping much better now, and is generally much more amiable, than a couple of weeks ago. The only difference in regimen is that I have been giving him Carlson's cod liver oil capsules, two or three a day. !!! I am also having his hair tested for mercury etc.--just sent it off two days ago, so won't know anything for a while.
Thursday, April 17, 2008
More work needed
Hi folks,
Mike's behavior hasn't been good recently. He isn't getting enough sleep for one thing, and I am thinking we haven't turned over every stone yet in this quest for healing. So I am going to:
Mike's behavior hasn't been good recently. He isn't getting enough sleep for one thing, and I am thinking we haven't turned over every stone yet in this quest for healing. So I am going to:
- pursue the question of mercury toxicity using a hair test, as suggested by a commenter to this blog and the protocol of Andy Cutler, and
- give cod liver oil, which I personally have responded to very well, as suggested by another commenter to this blog according to the senate testimony of Mary Megson, MD, about how it can help mitigate damage caused by vaccine toxins.
Stay tuned and keep up the comments! Thanks!!
Phyllis
Monday, March 31, 2008
A letter I sent
Here is a summary I am sending to my Nurture newsletter list, from my ebook Web site Nurturing Your Asperger's Child.
Two years have passed since I wrote this newsletter series, and I wanted to tell you about what has been going on with Mike. Mike is now 15. We have been using a "biomedical invervention" on him, involving taking plenty of nutritional supplements. I am very happy to say that he is no longer an explosive, angry, depressed young man. He is on an even keel. He still has the social deficits that he had before--difficulty seeing another person's point of view. So he isn't "cured." Nevertheless, he is a lot easier to deal with and is doing better in school. Also, he is no longer on the medication that was making him gain weight, Abilify. In addition we are dropping down on the dose of some of his other meds.
What's happening is this: the medical profession is proceeding on Asperger's research in its usual slow way, but there are plenty of parents like me who find out that help is available and don't want to wait until their child is no longer a child.
If you want to find out more or sign up for a "rescue angel" mentor, please go to http://www.generationrescue.com .
Meanwhile, here's more on my story, if you are interested.
There is an organization called Defeat Autism Now, or DAN, that has come up with a medical protocol. Doctors following the protocol do extensive and expensive testing of blood, hair, etc., recommend supplements, and monitor the results with repeat testing.
There is also a protocol developed by Dr. Amy Yasko, where a genetic test looks for certain mutations which Dr. Yasko has determined tend to affect the way the mitochondrial cycles work. Again, a list of supplements is administered, and plenty of expensive testing monitors the results. This is the avenue I chose to try in June, 2007.
Both avenues are targeting work done by the mitochondria in each cell in our body. These little factories take some inputs and make some outputs, and keep working on it till they come back to where they started. A diagram looks like a wildly complicated version of the water cycle (sea water becomes rain becomes ground water etc. etc.) In individuals with autism, and in individuals with a variety of ailments, imbalances in these cycles cause problems. So if you take a bit of this supplement and that supplement, you may cause the interconnected cycles to work better. Question is, which supplements?
We tried the supplements in the Yasko protocol between June and November and weren't getting good results. But I also wasn't paying for the expensive testing, either. (As much as $10,000 per year!!!) Then someone suggested using a chirorpractor to determine which supplements work well for Mike. Some chiropractors are trained in Applied Kinesiology, also called muscle testing, and are already familiar with the basic idea of tweaking these mitochondrial cycles using various supplements. Only instead of expensive testing, they determine whether putting the supplement on your tongue causes your muscles to suddenly get weak or not. If your muscles get weak, then it's not what your body needs. Sounds pretty weird, but it works!
Using this and Yasko's list of supplements, we have determined which ones are helping Mike, and are giving them to him. Comparing what works for him to what works for another individual's kids, I can tell you, it's different for every person. And, in her case, her kids ARE cured. It's my theory that the genetics in my family make Mike's autism more difficult to treat. But possibly you are in the vast majority of families where autism has just showed up in this generation, and yours will be easier to treat.
Two years have passed since I wrote this newsletter series, and I wanted to tell you about what has been going on with Mike. Mike is now 15. We have been using a "biomedical invervention" on him, involving taking plenty of nutritional supplements. I am very happy to say that he is no longer an explosive, angry, depressed young man. He is on an even keel. He still has the social deficits that he had before--difficulty seeing another person's point of view. So he isn't "cured." Nevertheless, he is a lot easier to deal with and is doing better in school. Also, he is no longer on the medication that was making him gain weight, Abilify. In addition we are dropping down on the dose of some of his other meds.
What's happening is this: the medical profession is proceeding on Asperger's research in its usual slow way, but there are plenty of parents like me who find out that help is available and don't want to wait until their child is no longer a child.
If you want to find out more or sign up for a "rescue angel" mentor, please go to http://www.generationrescue.com .
Meanwhile, here's more on my story, if you are interested.
There is an organization called Defeat Autism Now, or DAN, that has come up with a medical protocol. Doctors following the protocol do extensive and expensive testing of blood, hair, etc., recommend supplements, and monitor the results with repeat testing.
There is also a protocol developed by Dr. Amy Yasko, where a genetic test looks for certain mutations which Dr. Yasko has determined tend to affect the way the mitochondrial cycles work. Again, a list of supplements is administered, and plenty of expensive testing monitors the results. This is the avenue I chose to try in June, 2007.
Both avenues are targeting work done by the mitochondria in each cell in our body. These little factories take some inputs and make some outputs, and keep working on it till they come back to where they started. A diagram looks like a wildly complicated version of the water cycle (sea water becomes rain becomes ground water etc. etc.) In individuals with autism, and in individuals with a variety of ailments, imbalances in these cycles cause problems. So if you take a bit of this supplement and that supplement, you may cause the interconnected cycles to work better. Question is, which supplements?
We tried the supplements in the Yasko protocol between June and November and weren't getting good results. But I also wasn't paying for the expensive testing, either. (As much as $10,000 per year!!!) Then someone suggested using a chirorpractor to determine which supplements work well for Mike. Some chiropractors are trained in Applied Kinesiology, also called muscle testing, and are already familiar with the basic idea of tweaking these mitochondrial cycles using various supplements. Only instead of expensive testing, they determine whether putting the supplement on your tongue causes your muscles to suddenly get weak or not. If your muscles get weak, then it's not what your body needs. Sounds pretty weird, but it works!
Using this and Yasko's list of supplements, we have determined which ones are helping Mike, and are giving them to him. Comparing what works for him to what works for another individual's kids, I can tell you, it's different for every person. And, in her case, her kids ARE cured. It's my theory that the genetics in my family make Mike's autism more difficult to treat. But possibly you are in the vast majority of families where autism has just showed up in this generation, and yours will be easier to treat.
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This blog describes how we started out on the protocol by Dr. Amy Yasko, who many say has cured or improved children with autism using a genetic-based nutrition therapy.