Monday, March 31, 2008

 

A letter I sent

Here is a summary I am sending to my Nurture newsletter list, from my ebook Web site Nurturing Your Asperger's Child.

Two years have passed since I wrote this newsletter series, and I wanted to tell you about what has been going on with Mike. Mike is now 15. We have been using a "biomedical invervention" on him, involving taking plenty of nutritional supplements. I am very happy to say that he is no longer an explosive, angry, depressed young man. He is on an even keel. He still has the social deficits that he had before--difficulty seeing another person's point of view. So he isn't "cured." Nevertheless, he is a lot easier to deal with and is doing better in school. Also, he is no longer on the medication that was making him gain weight, Abilify. In addition we are dropping down on the dose of some of his other meds.

What's happening is this: the medical profession is proceeding on Asperger's research in its usual slow way, but there are plenty of parents like me who find out that help is available and don't want to wait until their child is no longer a child.

If you want to find out more or sign up for a "rescue angel" mentor, please go to http://www.generationrescue.com .

Meanwhile, here's more on my story, if you are interested.
There is an organization called Defeat Autism Now, or DAN, that has come up with a medical protocol. Doctors following the protocol do extensive and expensive testing of blood, hair, etc., recommend supplements, and monitor the results with repeat testing.

There is also a protocol developed by Dr. Amy Yasko, where a genetic test looks for certain mutations which Dr. Yasko has determined tend to affect the way the mitochondrial cycles work. Again, a list of supplements is administered, and plenty of expensive testing monitors the results. This is the avenue I chose to try in June, 2007.

Both avenues are targeting work done by the mitochondria in each cell in our body. These little factories take some inputs and make some outputs, and keep working on it till they come back to where they started. A diagram looks like a wildly complicated version of the water cycle (sea water becomes rain becomes ground water etc. etc.) In individuals with autism, and in individuals with a variety of ailments, imbalances in these cycles cause problems. So if you take a bit of this supplement and that supplement, you may cause the interconnected cycles to work better. Question is, which supplements?

We tried the supplements in the Yasko protocol between June and November and weren't getting good results. But I also wasn't paying for the expensive testing, either. (As much as $10,000 per year!!!) Then someone suggested using a chirorpractor to determine which supplements work well for Mike. Some chiropractors are trained in Applied Kinesiology, also called muscle testing, and are already familiar with the basic idea of tweaking these mitochondrial cycles using various supplements. Only instead of expensive testing, they determine whether putting the supplement on your tongue causes your muscles to suddenly get weak or not. If your muscles get weak, then it's not what your body needs. Sounds pretty weird, but it works!

Using this and Yasko's list of supplements, we have determined which ones are helping Mike, and are giving them to him. Comparing what works for him to what works for another individual's kids, I can tell you, it's different for every person. And, in her case, her kids ARE cured. It's my theory that the genetics in my family make Mike's autism more difficult to treat. But possibly you are in the vast majority of families where autism has just showed up in this generation, and yours will be easier to treat.

Comments:
I wish you would mention Andy Cutler's protocol... it's based on a $79 hair mineral test... and it's very affordable. Best yet, it goes straight to the source: mercury; and for many kids results are seen within 3 rounds... it's easy to fit it in with school schedules... and it's usually/often done by parents and parents alone... the yahoo group autism-mercury has lots of files and lots of parents to help one get going.

Safe - affordable - flexible - good results - good support - easy compared to other protocols out there...

As for Mike and his bipolar traits getting better: congratulations ! I did learn a tidbit I thought you may think is interesting... mercury displaces lithium. Mercury toxic individuals often have little lithium in their blood anymore - and lithium deficiency is often a characteristic of bipolar disorder. Hair tests are good indicators of lithium levels.

So if you want even more affordable than Yasko and AK... and simpler... all of this IMHO of course, consider Cutler's protocol.

Good luck...
 
Thanks so much for the input!

As it happens, the chiropractor says neither Mike nor Shannon has mercury issues. So I am trusting her on that, since the rest of what she does works so well for them and for me. Shannon's autism became somewhat apparent at age 4 when she lost eye contact but was otherwise normal. Mike's first became somewhat apparent at age 8 by his squirrelly behavior typical of a younger child. So the lack of mercury issues would agree with that later onset I suppose.
 
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